Cranberry Moms

Dear Readers, My apologies for being so late on posting our last story honoring those who deal with rare birth defects. I’ve been out of commission with a nasty cold and am just starting to pull my head of our the cloud. Please do take a few minutes to read Aly’s story as written by [...]

Here is a video compiled by Vanessa an EA mom in honor of all children born with EA/TEF (OA/TOF). If you have a few minutes I highly recommend watching this. I’m not the kind to spend my time watching such videos, but this one is simply amazing and will touch your heart.

Thank you for taking the time to read and experience a bit of the struggle moms and families with children of EA/TEF live with everyday. Today we will be posting our last story on MacKenzie; a little girl with the resilience of a superhero . — Many thanks, Revel and Alison Mackenzie’s Story – by [...]

Avery’s Story – by Stacy Life is not a race-but indeed a journey. Be honest. Work hard. Be choosy. Say “thank you”, “I love you”, and “great job” to someone each day. Go to church, take time for prayer. The Lord giveth and the Lord taketh. Let your handshake mean more than pen and paper. [...]

Noah’s Story – by Nicole My children are my passion, but a close second is my desire to help support others who are dealing with EA/TEF and VACTERL association. My daughter was born without any major medical issues and continues to be incredibly healthy. We didn’t have any idea our son would be born with [...]

I was impressed many years ago by a French doctor and mother who was quoted in an article in the NY Times as saying something to the effect of, an important way for her to show her love for her own child was to care deeply about the welfare of the children with whom her [...]

Renee’s Story – by Michelle My husband Billy invented his own word to describe Renee when she was in the NICU at Boston Children’s Hospital, he said she was full of “toughnacity” or in other words, she’s the combination of tenacity and toughness! When I would get sad or worried about her just hearing the [...]

Lord, help me remember that nothing is going to happen today that you and I together can’t handle. Emma’s Story – by Katie Emma was born on March 20, 2009. Shortly after birth, the pediatricians knew something was wrong. While trying to suction her stomach, the tube kept curling back up. One of the doctors [...]

Did you know that January is National Birth Defects Awareness Month? I’ll admit, I didn’t have a clue. Or, to be even more honest, I was either too busy with life or too busy with my own healthy newborn to notice. Besides worrying a bit here and there about birth defects for the nine months [...]